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Feeling the Seasonal Shifts

Still Sick, Still Here
Starting Nov 04, 2026 12AM UTC

About this Session

The seasons change, and sometimes our bodies have a lot to say about it.

For those living with chronic pain or illness, a shift in the weather can mean a whole lot more than swapping out our wardrobes. Cold weather might bring more aches and stiffness. Allergies, changes in daylight, and even the sensory experience of a new season can affect how we feel and function.

And while some of us might look forward to certain seasons, others may dread what they bring. Sometimes we love a season even when our bodies don't.

In this Space, we're talking about the relationship between seasonal changes and chronic illness. From how our symptoms respond to the weather to the ways we adapt our routines, we'll explore what it's like to live in a body that doesn't always welcome a change in season and how to find balance in the change.

Come as you are, whatever your body's forecast looks like today. 💜

About this Space

Vibe: Rest without apology. Truth without proof.

This Space is for people living with chronic pain, chronic illness, or the blurry in-between. It’s for when you’re tired of being doubted, tired of being strong, and just… tired. Here, you don’t have to convince anyone of what you live with. You don’t have to downplay it or over-perform to be believed.

🫂 THIS SPACE IS FOR YOU IF:

  • You’ve lost jobs, friendships, or parts of yourself to pain or illness.
  • You’re managing symptoms and managing the disbelief of others.
  • You’re tired of suggestions. You want solidarity, not solutions.
  • You want accommodations, and also don’t want to be seen as “less.”
  • You say “I’m fine” when you’re not, because it’s easier.
  • You follow every health routine—or ignore them—because both are survival.
  • You’re stuck between wanting a diagnosis and fearing what it could mean.
  • You’re just looking for one hour where you don’t have to pretend you’re OK.

In this Space, we honor boundaries, rest, rage, and contradiction. We don’t require “silver linings” or progress updates. We believe that grief, joy, shame, and relief all have room here.

💬 TOPICS WE MAY EXPLORE:

  • Support Without Fixing
  • Asking for Accommodations
  • Grief for the “Before” Self
  • Medical Trauma and Mistrust
  • Invisible Illness
  • Wellness Culture Disillusionment
  • Coping Trade-offs
  • Needing a Break From Illness Talk
  • Being Seen Fully

💚 WHY THIS SPACE MATTERS:

Living with chronic illness or pain can make the world feel like it’s not built for you. You navigate every day carrying weight others can’t see—constantly adapting, advocating, and enduring. That’s why this Space matters. It gives you permission to just be.

You can join with your camera off, mid-flare, horizontal, silent. You can show up as you are: sick, uncertain, angry, lonely, laughing, grieving. This is your hour to not be productive. To not teach anyone. To not perform wellness. To be more than a diagnosis—and more than a body in pain.

This Space is held twice a month on Tuesday's. Tell a Spoonie. See ya'll soon!

Please reach out to Claire if you need any accomodations to participate in this Space: claire@totem.org.

Meet the Keeper

Claire (she/her) is a passionate advocate for refugees, immigrants, survivors of domestic, sexual, and teen dating violence, and queer communities. With roots in West Michigan, she brings a trauma-informed lens to community engagement, training, and program development. She believes deeply in the power of community, dignity, and lived experience to …

Reach out to the Keeper: claire@totem.org
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